Hello friends,

I went for a follow up visit to the nephrologist Wednesday to find out my results.  I am trying not to dwell on this and have cried quite a bit.  I had my dad go with me and I am so glad I did!  He got quite choked up himself and it’s probably the 3rd time in my entire life that he’s cried (that I could witness).

I have a kidney diseas called IgA nephropathy.  There is no rhyme or reason this came about– she said kidney diseases just sneak up on us.  She misdiagnosed the losing 40% of function– it’s 50% in less than a year and just in the past (2) weeks I have lost another 20% and now have only 30% function of both kidneys.

There is no treatment or cure for this.  What the plan is: slow the deterior process down.  This is done through fish oil and lowering my cholesterol.  Yes, for those that do not know, I have high (high risk) cholestrol.  This is all caused by the disease.

She shared that she will not discuss dialysis or transplant until i reach 20%.  For all we know, this could happen in the next week or 2–

I am to have a follow up in 2 months– I am not okay with this and neither is my family.  How are we to know if things are deteriorating?  Being on medication that I just started yesterday to lower cholesterol and the fish oil is going to take a week or so to show results, right?  The only way to tell the function is deterioating and the cholest. is lowering is through blood work.  I think I should be having this done weekly.

I have a call into the Dr. to ask this–

I am still not sure about my job– I shared with my boss that I am doing the best that I can physically and mentally and if that is not good enough for the big boss then she needs to do what she needs to do.

I will share that I have a couple really great leads that I am pursuing thanks to you wonderful friends for sharing some of these!

I continue to ask for prayer– I do believe that God can heal me completely.  I also am okay and have accepted if this is His will that I go through all of this and need a transplant in the next year, I am okay with that too.

I wish you and yours a wonderful Merry Christmas!

Carmen