Yet another couple weeks have gone by and still have not heard back from my nurse coordinator. We have called and left now, 3 voicemails. Needless to say, I don’t have a whole lot to update on getting activated.
I have received a couple new offers from “strangers” to be tested. Well, if I’m not activated, no one can get tested. What’s the point?
Blood pressure’s still doing well and holding at normal. Praise God! I should be getting my labs drawn again in the next week or 2. I know I see the Nephrologist in a couple weeks also. Other than being down right exhausted all the time, I am doing quite well. I have to admit, I am quite surprised at how well I am doing despite how insanely busy I have been this month.
“Mr. Right” is still absolutely wonderful and very supportive. I do have to remind him when I am tired that it’s a different kind of tired- it’s really hard to explain this. It’s not your average “i didn’t get enough sleep tiredness.” It’s more like I ran a marathon and I am physically& emotionally exherted. I have been rather short with him this week and really don’t like it when he says “man up.” It’s extremely difficult to force myself to move forward when I have no physical energy, let alone, not functioning mentally either. It’s not an excuse; it’s my way of life right now. It’s so frustrating to try to explain to people. No one gets it. Unless you personally are going through exactly what I am, you won’t thoroughly understand.
He did pay me a really high compliment just this morning- he told me that I shared a lot of my character with him this week. I asked- “is that a good thing or a bad thing?” (since I knew I had been short with him). He said it was very good! I perservered and forged through when I absolutely did not have it. He admired the strength that I had been “holding on reserve” that he knew I had. He based this on everything I went through with the failed transplant last year. I was deeply touched. He always would just stop and hug me this week when I was just frustrated over “little things.” I felt like crying each time. I am so truly blessed by this man!
Despite my totaly exhaustion this week, I managed to get up at 7:30 this morning to attend a local networking event. Now, let me remind you, I don’t usually get up until at least 10am; sometimes later. So this, is pretty darn early for me and makes for even longer and more tiring day. I went and boy, am I ever glad I did! There just so happen to be a local newsreporter there who specially does health related stories. She introduced herself to the large group and gave out her email address as she shared she’s looking for story ideas. The guy next to me kinda nudged me and said, “you need to talk to her.” I grabbed one of my Kidney fliers, introduced myself and shared briefly what my flier’s about. She was rather impressed, reached in her purse to give me her card and said, “please email me.” After I sat back down, the guy next to me said- “people come into your life for a reason. She may be your reason.” I will definitely keep you posted should I be featured on TV.
Well, I think that’s about all…I have a busy weekend this weekend so I’m going to get some Kidney Chi in this evening before I go to sleep.
As always, thank you for the encouraging words, prayers, and support!