I am a single healthy female in her early thirties that was diagnosed with a chronic kidney disease called IgA Nephropathy on December 17, 2008. At that time, just a week before Christmas, I had lost 70% function in both kidneys and was going downhill pretty fast. You can read in more detail about how
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Hello friends, Thank you again for your patience.  I know you are probably all waiting on pins and needles to find out how I am doing.  My apologies as I really have not had the energy to check nor compose emails the past few days.   First of all, I want to share that I
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Hello friends, Wow! What a week!  Let me give you the update-  I want to apologize my emails are so long– there is so much to cover.  This is why creating the facebook page will help. I had to redo my labs Thursday and Friday last week. I tell you, I was beginning to look like
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Hello Friends, It’s almost the end of July and wow, such beautiful weather!  I wanted to give you an update of my status:  By the title of the email, yes, I have lost a little more kidney function the past few weeks. As the Dr shared, I will start to get sicker.  I can attest to
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Hello friends, It has been a little while since I have emailed you.  I think the last health news I shared, my function was stabilized. My heart is very heavy as I just came from the specialist, a follow up from Feb. 26.  Things have unfortunately gotten worse. I had to start taking the shots
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Hello friends, Thank you to those that call or write to check in and see how  i am doing.  I appreciate it very much. I apologize for not taken the calls all the time as sometimes I honestly do not feel like talking. I know it has been a little while since you have heard from me.  Last
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Hello friends, I wanted to share some good news with you– my health is stabilized. What this means is-I have not lost any more function of my kidneys in the past 3.5 weeks. I may get to be one of the blessed individuals that live a full life with just 30% function. Thank you for
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Hello friends, The specialist Dr. ( a nephrologist– specializes in kidneys, diabetes, hypertension…) had a cancellation Tuesday and was able to see me.  This is totally God and I am so grateful as I was scheduled for February 2. I have some sort of kidney disease.  Not sure what and the level of it.  I
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Hello all, Happy Thanksgiving to you! I received my results from my CT test and everything looks good.  They scanned my head and my organs.  Due to my abnormal tests that came about in the blood and urinalysis, I will be having a more specialized test taking a closer look at my endocrines. I am
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Here is the latest of things- I MAY have a condition called Pheochromocytoma– please look it up to understand it more. My Dr. has NOT officially diagnosed me.  I am a puzzle to her and she will take one piece at a time and get to the bottom of things.  I had (2) abnormal tests come
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